Funds raised by Cool Cars for Kids are targeted towards delivering care, providing support and driving research for children with rare genetic diagnoses to ensure a brighter future through the development of novel treatments and cures.
HOW OUR FUNDS ARE BEING USED
The Roberts Individualized Medical Genetics Center helps thousands of patients and establishes diagnoses of rare diseases that may have otherwise been missed, in turn allowing for improved management and treatment.
Cool Cars for Kids helps to fund specialty clinics within the hospital such as the Cornelia de Lange Syndrome and Related Diagnoses Center as well as the newly formed Kabuki Syndrome clinic
July 13th, 2019, the first “CHOPS” Syndrome Meeting took place at the Children’s Hospital of Philadelphia. Nine families from across the world gathered for this special opportunity.